Researching into sticky blood

Contact Address

Louise Gergel Fellowship

c/o APS Support UK (formerly Hughes Syndrome Foundation)

The Orchard,

White Hart Lane,

Basingstoke,

Hampshire,

RG21 4AF

Phone:

0300 323 9943 or 01256 423896


Email:

info@lgfellowship.org

Media calls (24 hrs)

Mike Petrook - 07931 302 877 or email: PR@lgfellowship.org

Charity Number:

1138116 
(Hughes Syndrome Foundation)

Visit our page on My Donate

Further information about Hughes Syndrome can be found at the following places


APS Support UK

(Formerly The Hughes Syndrome Foundation)

www.aps-support.org.uk


Wikipedia

http://en.wikipedia.org/wiki/Antiphospholipid_syndrome


Netdoctor 

www.netdoctor.co.uk/diseases/facts/antiphospholipid.htm


Home Health UK

www.homehealth-uk.com


BBC

www.bbc.co.uk/health/conditions/hughessyndrome1.shtml


Medicinenet

www.medicinenet.com


Rare Thrombotic Diseases Consortium

rarediseasesnetwork.epi


St Thomas' Lupus Trust 

www.lupus.org.uk


The London Lupus Centre

www.londonlupuscentre.co.uk


Lupus UK

www.lupusuk.org.uk


BT - Never heard of Hughes Syndrome? You could still be at risk

https://home.bt.com/lifestyle/wellbeing/never-heard-of-hughes-syndrome-you-could-still-be-at-risk-11363983158073


Helpgroups and discussion groups


An International Support Group for people who have Hughes Syndrome/ Antiphospholipid Syndrome.  We offer support, help, understanding and information about Hughes Syndrome/Antiphospholipid Syndrome.

http://health.groups.yahoo.com/group/APLSUK/


Have you had recurrent miscarriages and discovered you have Hughes Syndrome or Antiphospholid Antibody Syndrome? Or do you have Hughes Syndrome and are either pregnant or would like to be. This is a group for discussing your fears and worries, asking questions and supporting each other.

http://health.groups.yahoo.com/group/HughesSyndromePregnancySupport/


APS Foundation of America - Friends and support

www.apsforum.com


Prescription drug information

Drug3k- Prescription drug information for consumers.

http://www.drug3k.com


Media Links


BT - Never heard of Hughes Syndrome? You could still be at risk

https://home.bt.com/lifestyle/wellbeing/never-heard-of-hughes-syndrome-you-could-still-be-at-risk-11363983158073


BBC Radio Oxford interview with Will Stammers yesterday - you will need to move the bar over to 2.11 as he was interviewed arowww.bbc.co.uk/programmes/p0...

Kent on Sunday e Spotlight on condition of ‘sticky blood’- page 32:

edition.pagesuite-professio...

 

South Wales Evening Post – Rare blood disorder was the cause of my seizure

 

http://www.southwales-eveningpost.co.uk/rare-blood-disorder-cause-seizure/story-26474671-detail/story.html#ixzz3bXcoPtAE

 


The contents of this website are for informational purposes only and are not a substitute for medical advice or treatment. You should promptly seek professional medical care if you have any concern about your health.

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